• About

    Wife to Bryce and mother of three children, LJ, Noah, and Sofia. Living in a very "special" world of special needs. LJ has cerebral palsy, myoclonic seizures, developmental delays, and cortical visual impairment. This is our yellow brick road.
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I admit, it’s been tough. Having two kids is not like having just one. And when one has special needs, it can be a real struggle. Add to that, some post-partum hormones, and we got ourselves a melting pot.

LJ is getting his second molers in. Which is slow and painful… for all of us. He wakes in the middle of the night, crying. He hasn’t been eating well. And he’s been biting himself, again.

Lots of changes these past few months, so let me catch everyone up. Rehab Institute discharged LJ and said they would call us in a few months to re-evaluate and see if he needs to come back. Since there was never really a clear answer as to why, this left both Louie and I frustrated. I mean, he’s doing so well and we just got a walker for him! (pictures of that to come!)

Our state cut funding for education and while budget cuts are all around, special education was hit pretty hard. All of the part time therapists were let go, which meant we had to say goodbye to our OT, Amy. We miss her. Especially since we’ve had a temporary one. Next week our permanent Rebecca is suppose to come. She’s actually from the same place as our vision teacher, Kim, which means she understands his cortical visual impairments. I’m excited to see what she has in store for him.

We saw a speech therapist (Teresa?). We’ll be seeing her for about once a month now. We got LJ a Big Mac, communication device, but right now, he just plays with it. I know he understands it (we have it saying, “More please” for food) but that big red button is just too fun not to play with.

Aquatic therapy is going great. LJ has a love for the water and especially loves it when his dad takes him to the pool in our complex.

LJ has also been spending 45 minutes, twice a day, in his stander, which is excellent!

Noah is starting to learn how to play. He loves to be held upright, which some have said could be a sign of reflux, but he doesn’t spit up much. I think he just likes to see the world. It’s amazing to watch him grow so fast. I notice all of his milestones, not matter how small. And while I cherish all of these little moments, they also make me sad for LJ. I’ve never had such conflicting feelings in my life.

They definetly listen to each other, though. When Noah cries, LJ thinks it’s funny. When LJ cries, Noah sticks out his bottom lip with the cutest sad face. It’s almost as good as what LJ use to use on us.

As for us parents? We’re beat. Yesterday was Louie’s birthday. We celebrated by staying home and drinking a beer. I know, we’re party animals.


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