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    Wife to Bryce and mother of three children, LJ, Noah, and Sofia. Living in a very "special" world of special needs. LJ has cerebral palsy, myoclonic seizures, developmental delays, and cortical visual impairment. This is our yellow brick road.
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LJ’s Birth Story:Part 7 The First of The Last

Catch up here..
By the second week, Louie and I were feeling a lot more confident about LJ’s progress. We talked to relatives more, giving them updates about his feeding and things like that. I invited both Louie’s parents and my dad and his wife up to the hospital, but only Louie’s parents came. Our pastor also came, though we aren’t the most frequent church attenders. Our family was put into several prayer chains.
Everyday, we’d drive to and from the hospital. When we left the hospital, we often stopped at a store to pick up something new for LJ; a book, an outfit (they let him wear his own clothes), a stuff animal. We had already brought his mobile the second day, so his space could be personalized.
Finally, they were able to take the breathing tube from his nose, which only left the feeding tube. They still wanted to make sure his stomach was strong enough to handle breast milk before removing the tube. However, with the majority of his lines gone, I was able to get some skin to skin time, which was extremely peaceful.
Please forgive my appearance, as I really didn’t care about what I looked like.
An occupational therapist came early that second week, to acess whether or not his mouth and tounge were strong enough for oral feeding. She did the first bottle feeding herself starting with the smallest amount. When the bottle was empty, it was clear he wanted more, which was more then the doctors had expected.
After about two days of bottle feeding, the OT reported we could move to breastfeeding. The lactation consultants visited with us and even stayed to help with the first initial feeding. It was an amazing experience. I was beginning to feel like a mom.

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