• About

    Wife to Bryce and mother of three children, LJ, Noah, and Sofia. Living in a very "special" world of special needs. LJ has cerebral palsy, myoclonic seizures, developmental delays, and cortical visual impairment. This is our yellow brick road.
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  • LJ’s Helping Hand Foundation

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Crazy Week Behind Us

LJ had five appointments last week. I was able to work 20 hours and still get a few other things done…

  • Normal visit with Debbie, our occupational therapist.
  • Had our last appointment with our pediatrician. She was very nice and listened this time. She loaded us with summer information and reassured us that it was a big deal that LJ hadn’t got his 9 month vaccine yet. She gave a few recommendations to our next pediatrician.
  • Nutritionist came over the same day, afterwards. Reported LJ had gained 1.5 pounds and had grown about half an inch. She was very happy and we just went over his feeding regimen and discussed his ideal calorie intake (900!) She’ll return in about a month, maybe one or two more times. I enjoyed her company (and bashing insurance with her).
  • Kim, the vision therapist came over. We mostly discussed the upcoming optometry appointment and the pediatrician appointment. She knew I had been having a hard time dealing with this week, since every time I turned around someone had a remark about LJ’s unknown future. She also made a few pediatrician recommendations.
  • Called the doctor my old pediatrician and Louie’s mom recommended. Of course the staff tells me his panel is full and is not accepting anymore patients with our insurance. Fabulous.
  • Friday, we had our appointment with the Opthamologist. We discussed his field loss and whether it was strabismus related or neurological. We received the answer that we have with every doctor; wait and see. We set up his surgery for July and both his pre and post surgery appointments. We also put him on a waiting list so we may be able to get him in sooner.
  • Louie’s mom called Dr. New Pediatrician and spoke with the staff. She takes her kids there and asked him to take her grandson as well. They obliged 🙂
  • Most of our medicals bill have payment arrangements now without us breaking the bank and still being able to take care of the rest of the bills.

And now that it’s a 3 day weekend there’s thunderstorms. Oh well. Are your plans getting rained on as well?


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